Applied Gerontology and Geriatric Medicine

A Pilot Study on Health-Related Quality of Life and Caregiving Burden of Caregivers for Dementia: A Cross-sectional Report on the Pre-Test Assessment Results

*Thomas T.H. Wan
Department Of Health And Public Affairs, University Of Central Florida, United States

*Corresponding Author:
Thomas T.H. Wan
Department Of Health And Public Affairs, University Of Central Florida, United States
Email:Thomas.wan@ucf.edu

Published on: 2017-12-18

Abstract

Objectives: Family caregivers of dementia patients were assessed using a survey instrument covering different domains of caregiver burden, physical well-being, social well-being, and psychological well-being.
Methods: In this pilot study, a total of 30 participants receiving home and community based services completed the pre-test survey during the period of April 26, 2015 through September 13, 2015. Demographic and personal characteristics of respondents were gathered from the survey.
Results: The average age for the caregivers was 54. Less than one-fourth of caregivers were spouses of the patients. The three healthrelated quality of life (HRQOL) indicators are shared in common with the same latent variable, having the factor loading of 0.51 with physical well-being, 0.61 with psychological well-being and 0.84 with social well-being. Those who experienced with poorer HRQOL scores reported with higher scores of caregiving burden. Self-efficacy was a stronger predictor of caregiving burden than the well-being indicators. It did modify the relationship between HRQOL and caregiving burden.
Conclusion: The moderating effect of self-efficacy on caregiving burden and health-related quality of life has been demonstrated in this pilot study. Self-efficacy has a much stronger influence than well-being indicators (HRQOL) on caregiving burden.

Keywords

Caregiving Burden; Health Related Quality of Life; Well-Being Measures; Self Efficacy; Dementia care

Introduction

Alzheimer’s disease (AD), an irreversible and progressive disease, is the fourth leading cause of deaths among the elderly in the U.S., following deaths from heart disease, cancer, and stroke. The number of people with AD is expected to reach 12 million in the U.S. Although AD has been better understood from clinical studies, the pathogenesis of AD is not clearly identified. Generally, AD results from brain cell atrophy and death of brain cells due to abnormal accumulation of plagues and neurofibrillary tangles in the nerve cells. Unfortunately, there are no effective treatments or drugs that can completely cure it or delay the occurrence of AD.